Event details

We are holding a charity day at The Pheasant, Waterside, Chesham, on 16th July to raise money for Great Ormond Street Hospital Children’s Charity - Registered Charity No. 235825

There will be a bouncy castle, face-painting, BBQ and raffle from 12pm, and a disco from 8pm.
We have some fantastic raffle prizes such as B&B at 4* hotel in Knightsbridge, Round of golf for 4, Restaurant vouchers, cinema and park tickets and 2 gallons of beer!

Story

Amelia was born with Beckwith Wiedemann Syndrome (BWS) and Hyperinsulinism (HI).

BWS is a rare condition caused by a fault with her growth Chromosome. This means she is unable to control her growth in the same way as other children. The features of BWS that affect Amelia are:

  • Macroglossia: which means she has a large tongue. She has had two tongue reduction operations already and is due to have another one this year (Hopefully this will be the last!)

  • Macrosomia: Large birthweight (born two weeks early weighing 11lb!) She also is very tall for her age

  • Hemihypertrophy which means her legs are different lengths.

HI is also a rare condition that causes Hypoglycemia, and is occasionally linked with BWS. This means that she produces too much insulin, causing her sugar levels to drop to below a safe level.  Untreated Hypoglycemia can lead to seizures and coma. She had surgery on her pancreas when she was 11 weeks old to try and reduce the amount of insulin she was producing. This made a huge improvement, and now her sugar levels can be controlled by medication.   

She was diagnosed shortly after she was born, and she spent 6 weeks in Lister SCBU before being transferred to Great Ormond Street Hospital, where she stayed for a further 7 weeks. When she was born, her sugar levels were the main issue. They were dangerously low, and it was very difficult to stabilise her. Once we moved to GOSH, we started to make progress and the care she received was amazing. After three long months, she was finally allowed to come home.  We still test her blood sugars on a daily basis to ensure she remains safe. She continues to have regular appointments at GOSH and will do until she is an adult.  Although she will always have the condition, the problems should settle down when she stops growing.

Fundraising

Since Amelia was born, we (along with family and friends) have been fundraising to raise money for Great Ormond Street Hospital charity. This year, Natalie Mahoney and Jonathan Eames are participating in the London Parks Half marathon on 9th October.

Donations have been made by:

Willow's Farm (St Albans)
Chiltern Pools Amersham
Empire Cinemas Hemel
BoJangles in Amersham
Holiday Inn Express
David Lloyd Gyms
Nandos Stevenage
Woodleys, Chesham
Gilbeys Old Amersham
Facepainting by Amanda


The Pheasant
J&L Coaches
North London Flying School
The Rembrandt Hotel, Knightsbridge
Paradise Wildlife Park
Kings Langley Opticians
Cinema/Theatre in WGC
Rollercity in WGC
Little Hay Golf Club


Donations can be made to: www.justgiving.com/natalie-mahoney or www.justgiving.com/jonathaneames,  on the day, or at The Pheasant.

www.pheasant-waterside.co.uk

For further details, please call Natalie on 07967 608209 or Jane on 07788 591030


Jane Clarke
The Pheasant
Waterside
Chesham
Bucks HP5 1QE

01494 783387

07788 591030


TOP


Web design by Jane Clarke